Friday, April 23, 2010


The intent of this blog is not to be depressing but to be realistic. Before my brother passed away from Scleroderma, I was not as aware as I am now about the disease. His wife knew about the disease and could probably provide great advice to anyone dealing and living with the disease (but this is an aside.)

My brother lived for 17 years with the illness and that in and of itself is a testament to the medical care he received, his support system, and his will to live. As I read up on this illness, treatment has come a long way from when he was first diagnosed.

So be encouraged; we don't know why things happen in life or why we are dealt the hand we have. I think what my brother did well was display how to live with the disease. At his funeral - this was a consistent theme from the many people that he impacted.

So living with Scleroderma may be difficult, but you can thrive while living with it.

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